Enjoy the little things, for one day you may look back and realize the little things were the big things. ~Robert Brault

Tuesday, April 17, 2012

Mondays

Carter is on tons of meds. (Duh.) Monday nights are his big night. He has 2-3 different kinds of medications depending on the Monday night we are dealing with. He has at least 8 pills (upwards of 10 on occasion). If he's awake he takes them fine.

If he's sleeping? Well, that's a different story. He is SOOOOOOOO (SO!) hard to wake up. It takes us several minutes to wake him up. Often times it involves removing any and all covers, turning on his light, using loud voices, splashing him with water, sitting him up... you name it, we've tried it. Once we have him sitting we reach for the meds and turn around to find him snuggled up again on his pillow. So, next time we hold his arm while reaching for the meds and water. He will take a sip of water and lay back down, assuming he has taken his pills. We finally recorded it (because he absolutely does NOT believe us in the morning when we tell him how silly he was being) so he could see himself. He laughed the entire way through it.

He's seriously such a trooper... especially after weeks like this past one. It was one of the hardest we have had and it's not letting up a whole lot. He's finally making it through an entire day of school today (an hour and a half to go!). Something he hasn't done for over a week. Poor guy. Two years and one month to go... but who's counting.

Side note: We are NOT giving Carter the drug "meth". He takes a medication called Methotrexate... but occasionally, joking around, we say he's a meth head. :)



Wednesday, April 11, 2012

Love Notes

What mama in the world doesn’t love a little Love Note from their little ones? (I see no one has raised her hand…) Mom’s love notes. They love ones that are just scribbles when our babies are just wee ones. We love ones that are full of misspellings when they are learning to write. Even though I’m not there yet, I’m sure I’ll love ones when they are off at college and missions. And, while I have quite some time before this one, I’m sure I’ll love ones when they are married and parents themselves stating that I WAS right all those years ago when they thought I was a complete buffoon. :)

This love note is special. It’s written on the back of a note pad. You know when you use all the paper and there’s just that piece of cardboard on the back of it that you just chuck? Except this one isn’t garbage. Carter wrote us this note and set it on our bathroom counter about a week before he was diagnosed. As bad as it is to admit, I wasn’t planning on keeping it. I hadn’t gotten around to throwing it away when we were faced with our son maybe not living a full, long, healthy life. At that moment, that little piece of garbage became one of my most prized possessions. It’s been on my mirror since then and every day it makes me smile and thank our Lord for letting us fight this fight.

Side note: the note above that is a VERY sweet card from my bestest friend. She’s amazing and has had a rough go the past few months. I heart her and I’ll keep her note forever and ever along with Carter’s.

Grandma:

1. I REALLY need to call you! It's been too long.

2: There are a lot of posts over on my photography blog with some recent pictures of the kids if you haven't checked it lately.

3. I LOVE YOU!!!